Table 2 Characteristics of IBD patients and informal caregivers
From: What do patients and informal caregivers value in IBD care? A narrative inquiry
Number of participants, n (%) | ||
|---|---|---|
IBD patients (n = 18) | Informal caregivers (n = 8) | |
Age | ||
18– 30 years | 2 (11.1) | 1 (12.5) |
31– 45 years | 4 (22.2) | 1 (12.5) |
46– 60 years | 4 (22.2) | 1 (12.5) |
61– 75 years | 7 (38.9) | 5 (62.5) |
> 75 years | 1 (5.6) | 0 |
Gender | ||
Female | 10 (55.6) | 5 (62.5) |
Male | 8 (44.4) | 3 (37.5) |
Education level | ||
Low | 4 (22.2) | 0 |
Intermediate | 7 (38.9) | 5 (62.5) |
High | 7 (38.9) | 3 (37.5) |
Ethnic background | ||
Dutch | 18 (100.0) | 7 (87.5) |
Other; born in Africa, raised in Europe | 0 | 1 (12.5) |
Relation with patient | ||
Spouse | NA | 4 (50.0) |
Parent | NA | 3 (37.5) |
Sibling | NA | 1 (12.5) |
Hospital* | ||
Academic hospital | 10 (55.6) | 6 (75.0) |
Non-academic hospital | 8 (44.4) | 2 (25.0) |
Disease phenotype* | ||
Crohn’s disease | 9 (50.0) | 6 (75.0) |
Ulcerative colitis | 8 (44.4) | 1 (12.5) |
IBD-unclassified | 1 (5.6) | 1 (12.5) |
Time since official diagnosis* | ||
< 2 years | 3 (16.7) | 2 (25.0) |
2– 5 years | 3 (16.7) | 1 (12.5) |
6– 10 years | 3 (16.7) | 4 (50.0) |
11– 25 years | 4 (22.2) | 1 (12.5) |
> 25 years | 5 (27.8) | 0 |
Perceived disease activity* | ||
Remission | 9 (50.0) | 3 (37.5) |
Mild complaints | 6 (33.3) | 3 (37.5) |
Active disease | 3 (16.7) | 2 (25.0) |
Experience with telemedicine*, yes | 10 (55.6) | 6 (75.0) |